The Shepherd family never takes a single moment for granted.
"We don't know from day to day what's expected," James Shepard said. "We really don't. That's the frustrating part."
Two of his daughters carry a genetic mitochondria disease that left them without hearing or the use of their limbs. Doctors have never seen it before, but they know it will take their lives.
"I did CPR right here in the middle of the floor, we were in the hospital and since that time we've been in and out of the hospital for the last 14 years," says James.
James and his three girls found Stacy and her three girls. They got married and became a tough team of eight.
"My kids have given up a lot of their own childhood and voluntarily helped take care of Meriah," Stacy said. "They bathe her, dress her, feed her. So, I'm really proud of my children."
Together they wanted to help their special sister, Tia, find happiness in her final days.
"She used to have smiles and all kinds of stuff before the disease really progressed," James said. "A lot of pain now really takes over those smiles."
On the wall, there is now a bucket list and a family who heard about Tia's last requests. That family contacted the Humane Society and adopted a Yorkie dog for Tia. It was the second wish on her list. The donation allowed the family to forget the pain and focus on the puppy.
Sister Meriah, dealing with the same illness, says the pair finds strength in each other.
"I want people to know that never give up. Just keep going," Meriah said.
"Live each day like it could be your last," James said. "I try to teach them and keep them strong willed and say tomorrow is a new day."
At the top of Tia's bucket list is to meet Taylor Swift. She was set to meet Taylor on Wednesday in Nebraska, but Tia was too sick to travel. The family hopes when Taylor comes to Wichita in August she will make time to meet Tia. A Facebook page gives updates on the girls' conditions. Click here to view the page.