Kansas couple says THC CBD oil could help save daughter's life
A bill introduced into the Kansas legislature would allow people with life-threatening medical conditions to get CBD oil with a small amount of THC.
Gwen and Scott Hartley are behind the bill. The Wichita couple has spent the last decade making sure their daughters were more accepted. They say now they're desperate to save their child's life.
"I wanted the world to understand how important they were and what value and worth their lives had," said Gwen.
Her daughter, Lola, is one year away from being a teenager, but her dwarfism puts her at a higher risk for sudden unexpected death in epilepsy.
"She has on average, I would say, between 10 and 20 a day. When she's ill, teething or under stress of any kind, it's more than that," said Gwen.
Now, the Harleys are pushing for a hearing on
"The law is actually an affirmative defense law which would allow us to go to a legal state, purchase the THC CBD oil that would benefit our child, bring it back into Kansas and not get arrested or lose custody of my child," Gwen explained.
The law would only allow for the oil form and would not change marijuana laws in Kansas. Gwen says CBD oil on its own isn't enough, but with the THC, it could save Lola's life.
The Hartleys know because of the other name on the law. The couple's oldest daughter, Claire, died on December 17, 2018. She was only 17 years old. While the family doesn't know for sure if it was a seizure, they're not taking any chances.
"It was one of the first things I said after we lost Claire was, I am doing this for her," Gwen recalled.
She says getting this access for their daughter and many other Kansans in need will be Claire's legacy.
The Hartleys say people may be scared of the law because it's new and they relate it to marijuana abuse. But the family says it's nothing like that and encourage everyone to call their lawmakers to push for a hearing this week.